Brain Overload
Saw Dr. Begum my neurologist yesterday, Wednesday we talked about Dr. Tocco-Bradley’s butcher job of my lumbar puncture procedure but readings definitely show I have excessive intercranial pressure. SO Begum prescribed a medication, DIAMOX that May relive this condition, But because this is not common pill my pharmacy does not have it in stock and has to order it and Michael the pharmacist is unsure if insurance will even cover it.
Thursday
Just feeling soooo overwhelmed today. The lumbar puncture finally gave “official” confirmation of excess intracranial pressure that my Neuro has had diagnosed since June 2006 but only now will the insurance allow me treatment. I have to go pick up my DIAMOX, the Pharmacy had it express shipped and just called me this afternoon to tell me it was in.
After approximately a month on this new med I have to get another lumbar puncture to see if it’s even working. Both my Neuro and I agree I need to find a new facility/doctor to perform the 2nd procedure cuz the last doc was a major $@#& up, But finding one to take my insurance is @#%$#$ pain. Then getting the referral paper work from my primary doctor and setting it all up. OUI! 
I’ve been trying to organize my med files, I mostly just have tests results but I’m finding out I should have been getting dictations from doc appointments too, especially after every major test/event, because doctor’s evaluation of procedures/tests can be very important to my case. Soooo I’m trying to remember and enforce my doctors sending me all files and dictation. Plus catch up with a few doc’s who didn’t honor my request/demand to send me copies like my eye doctor. They didn’t even send a report to my primary doctor, that’s just professional courtesy. Anyway I NEED to do this and make an organized outline so I can send copies to my attorney and to S.S office because I am appealing my denial for disability assistance.
I still need to find an Endocrinologist. Dr. Nemeth asked me to see one many months ago but other medical mysteries /problems kept arising. If and when I do see an Endo I get to look forward to a barrage of hormonal and possible chromosomal blood tests and hopefully nothing else.
Also I have to make an appointment with a gastric surgeon, likey have to pay for the consult my self and then if the insurance covers it I’ll probably be having surgery later this year. Because I have a small hiatus hernia that needs repair and most my Doctors are strongly recommending and urging me to have some digestive rerouting done.
My brother in law jokes I have so many medical anomolies and disorders that I should be on the TV show HOUSE or that I should be eligble for EXTREME MAKEOVER: HOME EDITION to come redo my parents house. I’d love to have them tear down this decaying heap and build our family a new handicap accessible, allergen resistant, Hepa air filtered home. But if you watch the show they always go for famlies with younger kids, I’ve never seen them do a rebuild for a multifamily household of adults(my neice is the only minor), specailly a bunch of overweight not so gorgeous ones like us. Though I could be pretty damn sexy if i wasn’t so sick and fat, LOL. 
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