Muscle, Blood, Fat and Family
My second CK blood series came back and was positive for skeletal muscle break down. Myopathy, this is just another part of the Autoimmune Storm I’ve been suffering through for the last couple years. The muscle weakness & pain gets worse and better every couple months, though it seems to be escalating each time taking more of a toll on my body. The blood tests finally caught it in the active phase, so I actual have clinical proof of my weakness. So at least I can prove it’s real but still I can’t do much about it and doctors haven’t told me anything. All I know is I have to keep doing my walking and exercise, keep rebuilding tissue so illness doesn’t cause muscle atrophy.
Saw a U of M hematologist, Dr. Blockenstedt on October 8th. My primary hematologist Dr. Winegarden sent me to her because she has more knowledge and experience with APS.
Was really a waste of time, Sit in the lobby, nurse takes me into the hall to have my vitals taken( I lost another 8lbs) then sent me back to the lobby. little later another nurse takes me to an exan room, does a quick medical history then an intern comes in to take a more thorough history, finally 2 hours later I see the doctor who gives me 10 minutes to pretty much tell me everything I already knew. Then Dr. Blockenstedt orders a massive amount of tests and tells me not to come back unless they find something new and unusual. Then off to find the lab, where they take 10 tubes of my blood.
I have been quite depressed over my obesity and how much weight I need to lose NOT wanting to look like a circus tent when I get married next October. I’ve been so focused on the ultimate goal, ALL I need to lose that I didn’t even realize what I’ve accomplished this year so far. The other day I was adding up the weight I have lost (I keep a log) and realized I’ve lost over 30lbs this year! When I have another 100+ to lose that seems insignificant but it’s a move in the right direction and I need to be happy with every little triumph.
The 2nd week of October my sister, her husband who recently returned from Iraq and 3 yr old nephew were in Michigan visiting. It was great to have them here, I miss them all so much. My nephew just brings so much energy and light even though that same energy can drive his mom crazy lol.
I worry about my nephew because he has obvious signs of Aspergers or Autism but the ONLY pediatric physician the military insurance allows my sister to go to refuses to allow my nephew to be tested. Maybe now that her husband is back he can persuade the doctor to do what is necessary. It is vital for an autistic child to begin a learning program at or before 3 yrs of age so they can better cope/adapt to schooling.
I also worry about all the stress this puts on my sister, taking care of 3rd child alone is difficult enough let alone autistic one. She has Diabetis and other health issues.Plus she has had to deal with a lot of unpleasant and nasty people at Fort Bragg. She is glad to be leaving there soon, even though moving to a new base is a lot of hassle.
This week my younger sis and brother in law will be moving in with my parents temporarily because they were chased out of thier previous living situation with his father in law. Which has prompted me to finish moving all my boxes over to the river house garage. “lil” sis and hubby will take my previous living quarters. Why am I going to the river house? because the myopathy is making it impossible for me to climb stairs safely and my parents want someone there to watch over the house but not move a lot in. As I havve mentioned in previous post the house was left to my father by his deceased parents and is in bad repair.
We are not moving much furniture in because the house is actually under construction. Most the flooring has been ripped out, the rest will be gone by end of the year and repainting is begining. Housing market it soo awful in michigan & the house needs so many repairs it won’t sell. The lack of available money from my retired parents and myself means the house is being repaired/upgraded at a snail pace. It makes me feel dejected and guilty because if I was healthy I could do a lot more myself. Anyway I won’t have such easy access to internet for a while so my blogging may lag but not like anyone will really notice.
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